Our lives have turned upside down since Tuesday morning. One minute I was getting the boys ready to go to the gym and the next minute I was dropping everything and rushing to the ER. Now here we are, 2 days later and I feel like I am still in a dream...or nightmare rather.
Lincoln has ALL. Acute Lymphoblastic Leukemia. I don't know too much about the disease other than it is changing our world drastically and it's breaking my heart. The good news is that 85 to 90 percent of kids survive and he is in excellent hands. The bad news is that he is in for a whole lot of pain, discomfort and suffering over the next 2 to 3 years.
Right now he's not doing so well. He's suffering from pain from bone marrow biopsy and Lumbar puncture. At the moment we're waiting for him to go down and get a port inserted into his chest that he'll receive treatment through instead of the IV from now on. He's so hungry and thirsty and keeps asking me for food and milk but he can't eat until after the procedure and it kills me that I can't give him anything. They are taking forever!!!! Try distracting your 2 year old from food and drink for 7 hours after waking up. And after not haven eaten since the morning before.
Last night was bad too. He was in obvious pain and couldn't get comfortable and just wanted to be held. I'm trying to stay strong for him but it's close to impossible to hold my tears in when his are flowing so regularly. He's just so perfect and sweet and innocent and I hate that he has to go through this and I can't explain to him why.
All that sob story being said...we have a lot we are grateful for including a close, wonderful hospital filled with wonderful doctors and nurses, and an amazing support system of incredible friends and family. Thank you all for the many emails and well wishes and offers to help. My parents are driving from Utah now to stay with us indefinitely which we're so grateful for. We definitely recognize these blessings but the fact of the matter is that all those things help Ryan and I and don't take anything away from Lincoln's suffering which is the only thing I want to fix.
Thank you so much for you're continued thoughts and prayers. I'll try and keep people posted on his progress.