Lincoln’s final results from his last biopsy came back and they are negative! He has no more cancer in his body and he is officially in remission. He went from 93% cancerous cells in his blood to zero in 29 days. That’s pretty awesome. We are so glad this is working and he is on his way back to total health. Doesn’t he look good!?
Even though the cancer is gone, he still has treatments for the next three years to ensure that it won’t come back. Induction is now over and he starts Consolidation phase on Monday. This phase is 57 days and looks pretty rough. He has four spinal taps during this phase, the first one this Monday. He gets chemotherapy through his port Monday through Thursday for the next two weeks, then has a two week break (although I still give him oral drugs during that time) and then he gets chemo Monday through Thursday through his port for two more weeks. Ugh. Not excited. He’s getting a few new drugs he hasn’t had yet and I hope he handles them well. He will have his port “accessed” Monday through Thursday, meaning he will have tubs hanging out of his chest for four days each time. I worry he’ll be annoyed with them and try to pull them out. We are going to have to be so careful.
In other news, we came home from his unplanned 3 night stay at the hospital due to a fever on Monday and he has had a great week since then. His blood counts are up and rising….just in time to knock ‘em back down starting Monday, but I’m learning to just really enjoy the good days and not think about the upcoming bad ones. He had a good time with Stevie at the hospital. We love him. He is a really good friend to Lincoln.
Remember that other little boy I have? The forgotten child? He’ll be 18 months next week. I fully intend on doing a photo shoot and blog post all about him. When Lincoln came back on Monday we kept him and Sawyer isolated from each other for a few days because Sawyer still had a runny nose and cough. Sawyer lived in the basement and Lincoln lived upstairs. It wasn’t ideal, but it worked. Today we reintegrated them and it’s been nice to have my boys together again. Love you Soy bean.