Parents Gone, Ryan back to Work
I was a little scared to be home alone with Lincoln all day all week. Ryan went back to work and my parents took Sawyer and went to DC to visit my sister. It's been okay though. I'm positive if my parents would have left Sawyer here I would be completely overwhelmed and unable to manage. Lincoln is really high maintenance. And I don't blame him. The doctors said that coming off of steroids can be as bad as being on them as far as irritability, but Ryan and I are starting to worry that this is just how he is right now. He's been of the steroids since Friday and he's still so cranky and volital. Everything sets him off...the big things like forcing him to take his medicines and the little things like changing his diaper or clothes, brushing his teeth, taking a bath, wiping his hands...those things he used to handle fine. Now he cries and fights at everything. His voice is totally gone from all the streaming. So, if Sawyer were here it would be too much. I sure miss the little guy though. The forgotten child. That's what it feels like.
Home Care Finger Pricks
Eric is our home care nurse. He comes once a week to take blood samples. The first week he came went well because Lincoln had no idea what was coming when Eric pricked his finger. Then he of course cried but got over it quickly. On Tuesday when Eric came for the second time I geared up for a big battle since Lincoln might remember the last visit. To my amazement he did great! He held out his finger, Eric pricked it and Lincoln didn't cry at all. I couldn't believe it. Eric put the bandage on and was gone. About ten minutes later Lincoln took his band aid off and started bleeding all over. His platelet levels (platelets clot your blood) are very low so his blood was thin and coming out fast. Also, any cut can be a potential source of infection so I got really nervous and tried to put a new band aid on him. Then came the battle. He was furious and did not want a band aid on. My friend was over and we had to pin him down and hold his hands apart for several minutes so he wouldn't rip it off with him screaming and flayling the whole time. When we let go he ripped the bandaid off but luckily it didn't bleed anymore.
I feel like this week would have been so much better if he didn't have his blasted mouth sores. They are a reaction to his chemo therapy and to treat them we give him a medicine FOUR times a day. So on top of his mouth hurting making him grumpy we have to do the medicine thing all day. It seems he's just recovering over the trauma of the last dose when it's time for the next. Fighting the medicines is one of the worst parts.
Good News from the Biopsy
On Monday we found out the results from his Friday biopsy. They couldn't see any cancerous cells in his bone marrow! I can't tell you how wonderful that was to hear. I guess the goal is to kill all the cancer with in the first 30 days so he is right on track. Then the next 3 years are spent keeping it from coming back. The doctor was very careful to remind me that he is not yet in remission, but that this is good news for now. A week from Friday, on the 17th they'll do another bone biopsy that is much more detailed, sensitive, thorough and accurate. If they don't see any in that one then he'll be in remission. In other words, just because they didn't see any in the less expensive, less accurate test last Friday doesn't mean there aren't any...but it's still a really good sign. And I'll take any good signs I can get. After such a bad weekend I was so glad to hear that all of this seems to be working.